I have 2 treatments under my belt! The worst part about the treatment is the head rest! I swear it is the most uncomfortable thing I have had to lay on in my life!!! No one can come up with a head rest that will allow the radiation to get through yet. While I am in treatment I have to wear a mask that covers my face and shoulders and is clamped to the table. It is a mesh type material that I can see out of, but I keep my eyes closed and try to catch a nap! The treatments are only 30 minutes. Since I did get a pink gun for Christmas, the mask is my first target when I can shoot again! So far I haven't gotten sick from treatment, I just get very hot and about 2 1/2 hours after I am completely exhausted. I don't think I will be having any late nights for a while!
Therapy went awesome today! Today with OT I made muffins. We practiced getting items from the cupboard, fridge, mixing, and getting in and out of the oven. I can't tell you how they tasted, but we heard they were very good! While at PT, we walked about 80 feet! My goal is to be at 150 feet next week! I was also able to complete the 4 stairs two times. I find it hard to believe radiation can work that fast, but my left leg responded so well today during exercises. Jon usually has to assist me and today he didn't. Maybe its mind over matter...hopefully tomorrow continues!
I met with another oncologist today and he went over everything with me again. Unfortunately, they are still presenting my cases to all of the cancer boards because they have not seen anything like this before. They said it is so rare. There are a few types of different cancers, but they are all so closely related to each other. Regardless of what type it comes back as, the best treatment is radiation. I hope before I am finished with radiation they will have answers. They will be sending my biopsies to NYU and possibly to St. Jude's hospital. I guess it is best to have multiple eyes looking at everything! Who knows, maybe I'll be famous in medical history!
Thanks again for all of your love and support, I wouldn't be able to do it without all of you!
"A negative thinker sees a difficulty in every opportunity. A positive thinker sees an opportunity in every difficulty."