Tuesday, July 15, 2014

No News is good news

Well at my last scan on the 3rd, the Dr said that there was no major change in the tumors.  I was pretty bummed because I was really hoping they shrunk more.  I have 2 Avastin treatments left, I have one on 7/17.  I am hoping and praying that the tumors shrink with these next 2 treatments.  I then asked the dr if i would ever walk normal again.  His reply was "a lot of prayers, hopes and hard work."

Maybe that is what I am bummed about...walking.  I was so active before and now its like I can't do anything.  Everything is a process and I can't seem to get past that.  I know it is going to be a long road to recovery...but no one seems to know how long.

 It is pretty bad that I look forward to physical therapy.  I love the therapist and for a few hours they make me forget I even have cancer.  PT is going great.  They feel I have made progress, which is always a plus.  I walk with a cane and my therapist holding on right now.  I have really bad balance.  I could only imagine if I had some wine how much worse it could be.

I will try to get better at updating.

I would like to ask to extend prayers to Ashlee Preisach as she awaits news for her transplants.  

As always, thank you for the continued thoughts and prayers.

"When I recover, I will have the courage to admit that I did indeed struggle, that there was a real problem, that I fought for my life and conquered the mountain."

Thursday, June 26, 2014

Keep on smiling...

Wow it has been a while since I have updated.

Let's start with after my last treatment with Avastin we found another blood clot in my lungs...so back to the hospital we went. They upped my lovenox medicines which jon gives me 2x a day. I did tell the Dr I had a benefit planned for me on Saturday and I couldn't stay. I was discharged on friday.

Saturday was the golf outing. I am so happy I was able to be there and be a part of the fun. I feel it was a huge success and have so many wonderful people to thank. It's amazing how am community comes together to show support.

I made it through that week and made it to Florida on tuesday. What a blast. It is great to see and spend time with family. The weather wasn't our friend until the end of the week. It rained mid afternoon but would get nice in the evenings.  We went out on the boat & went fishing one night.  I can't wait to go back!

Today I had a treatment for Avastin.  I had to get my blood work completed..no tears and didn't have to hold a hand...and the results showed my white blood counts are very low. So pretty much I an more susceptible to infections. I have to get an injection to help increase the white blood count.

The dr. Said next week's scan is important because the radiation should be out of my system and we will get a better look at the tumors. Fingers and toes cross it is still working!

I just want to thank you for your thoughts and prayers.  I know I say it every time but  on days when I don't feel like getting out of bed I can feel "team beth " cheering me on.

Wednesday, May 21, 2014

All things are difficult before they are easy.

Well good news travels fast.  I had my rescan yesterday and the Drs were happy with my results.  They said that from my evaluation the strength in my legs is coming along great.  I can wiggle my toes on my right side and can pull my foot back.  My left is still behind, but it is a work in progress.  As far as my tumors go, they show signs of shrinking.  The Avastin is doing its job.  They said we will proceed with this treatment and will have about 4 more.  So another 12 weeks.  I will get rescanned again July 3. 

The blood clot injections are going ok.  Pretty soon my stomach is going to look like connect the dots.  I can't wait for my trip to FL next month and show off all these bruises.  I should just be grateful I am going to FL! 

I'm looking forward to the upcoming weather this weekend!  I have started reading again and am enjoying sitting outside on the new deck.  I'm open to suggestions on books.  I read House Rules by Jodi Picoult last week and am working on Sing You Home this week.

Thank you all for the thoughts and prayers!

Friday, May 16, 2014

DVT update

Yay! I get to come home today. I have been on iv blood thinners since Wednesday and today when I get discharged I will be on injection blood thinners.

They will show me how to give myself injections ... if you don't know I absolutely hate needles. Not looking forward to this but whatever it takes!

Thank you for your prayers and thoughts.

Thursday, May 15, 2014

Just an update

Well one thing leads to another! I have noticed my legs were swelling ...to the point where you couldn't tell I had ankles. I had to get a Doppler test yesterday and they found I have DVT blood clots in both legs.

I've been admitted to Shady Side. I'm not in pain....maybe hunger pains...but the drs should be in today with more information. They feel I will be here another night and get to come home tomorrow. I hope!

As always I will update as we are updated! Thanks for the support and prayers!

Tuesday, May 6, 2014

Be strong, you never know who you are inspiring.

I had my 2nd dose of avastin yesterday and it was a piece of cake. The nurse didn't hurt me too bad with the Iv and blood work so I was happy about that! I only have a small bruise. I also had an appointment with a bladder Dr today. He said everything I feel seems to be from the back surgeries and not cancer.
He said I will have to deal with the sense of urgency for a while and hope the nerves calm down.

On better news I have decided to go to Florida and visit with my cousins in June. I got one month to get into semi bikini form. I'm sure PT will continue to push me and hopefully get some muscle form back in my legs. As far as arms, I think the wheel chair got me covered. It will be nice to just get away and lay by the pool :) .

Lately to help with my boring days I have been pinning recipes to try. So far I have made dinner every night for Jon and I. I know big whop I made dinner but it's a lot of work! Up and down out of the chair, not being able to carry everything...but Im getting through! This Friday I'm making dinner for the Lee side of the family... I got some good ideas :) . I'll have to let you know how things turn out!

Jon & I appreciate all of your thoughts, prayers & support.  I would especially like to thank my cousin sean for running the 1/2 marathon in honor of me. You made me feel so honored :)

Thursday, April 24, 2014

It's a good day to have a good day!

So little to do, so much time!  So far I have cleaned out my drawers and some of Jon's.  I applied my "if I haven't worn it in 6 months, it's gone." ...Sorry Jon that rule worked on your behalf as well.  I don't know what I plan to do next.  It's hard wanting to do things and being from the waist down.  Jon's starting to learn to leave things lower in the fridge for me...except for the Easter candy. 

We got a new deck built this week.  Our old deck was not very handicapped friendly and the steps did not support me getting in and out of the house.  With your thoughtful donations we were able to make this happen.  Our next project are new sidewalks so my walker and wheel chair can fit.  Right now I am half in the grass, half on the sidewalk.  It will be nice to sit out on the back deck and enjoy the sunshine soon.

I'd like to give a huge thank you to everyone involved with the pancake breakfast.  Seeing all the volunteers working is amazing.  Thank you for giving up your time and energy to help bring a smile to my face.  Growing up I couldn't wait to get out of this town and move on from it and 27 years later I am here, surrounded by people who are so caring.  I'm glad to be from a small town that shows the amount of support and love we all share.  Not only towards myself, but towards others in need.  I hope you all know how much that means to my family and I.  Thank you J.J.'s & Courtyard for making this benefit possible.  Thank you to all the volunteers that helped to sell tickets & baskets.  And thank you to everyone who didn't eat all the cookies so they could come home with me =) .


Physical Therapy has been going okay.  I currently am  having right leg, hip & back pain.  We are working hard to try to get these worked out.  It's had to believe how 1 week of being sick has set me back.  I wouldn't say we are back at the beginning but it's frustrating for me because I was getting farther than I have been then its back to being barely able to walk with my walker.  I keep telling myself "One day at a time!"

Thank you for being so patient as I update this blog.  I feel like my life is rather boring right now...I do the same thing everyday.  I may use this time and learn how to bake...my aunt has been on me for months now.  She can get my first bad batch!


Thank you for the continued prayers, love and support!